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Aligning research with community identified priorities and health disparities is a foundational component of CEnR. In community based participatory research (CBPR) ideas are often generated at the community level. Below are resources on CBPR as well as state, regional, and national data sets exploring health disparities and priorities developed through community health needs assessment and other data collection processes, and resources for working with certain historically marginalized communities who often have disparities in health outcomes.

Community Driven Research & Community-Based Participatory Program (CBPR)

Community-Based Participatory Research Program (CBPR) | National Institute on Minority Health & Health Disparities (NIMHD)

The NIMHD Community-Based Participatory Research Program (CBPR) supports collaborative interventions that involve scientific researchers and community members to address diseases and conditions disproportionately affecting populations experiencing health disparities. Recognizing the strength of each partner, scientific researchers across multiple disciplines and community members collaborate on all aspects of the project, which may include a needs assessment, planning, research intervention design, implementation, evaluation, and dissemination of community-level interventions. The community is involved in the CBPR program as an equal partner with the scientists. This helps ensure that interventions created are responsive to the community’s needs.

Community-Centered Research Design: CEACR Speaker Series April 2024

Understanding community-based participatory research through a social movement framework: a case study of the Kahnawake Schools Diabetes Prevention Project

Tremblay, MC., Martin, D.H., McComber, A.M. et al. Understanding community-based participatory research through a social movement framework: a case study of the Kahnawake Schools Diabetes Prevention Project. BMC Public Health 18, 487 (2018). https://doi.org/10.1186/s12889-018-5412-y

Maine Community Health Needs Assessment (CHNA) & Community Health Improvement Planning

Maine Shared Community Health Needs Assessment

The Maine Shared Community Health Needs Assessment is a collaboration between Maine CDC, Central Maine Healthcare, Northern Light Health, MaineGeneral Health, MaineHealth, and Maine Community Action Partnership.

Data Sets & Tools to Identify Health Disparities

Health Disparities | Maine Public Health Data Reports | MeCDC | Maine DHHS

Minority Health Social Vulnerability Index (SVI) Explorer

This index is a customized version of the Centers for Disease Control and Prevention/Agency for Toxic Substances and Disease Registry Social Vulnerability Index (CDC/ATSDR SVI). Minority Health SVI uses data from the United States Census Bureau and other public sources to help identify communities that may need support before, during, and after disasters, with a focus on minority racial, ethnic, and language groups as well as medical vulnerability.

Data Sources and Methods - Healthy People 2030 | odphp.health.gov

Healthy People relies on high-quality data to measure progress toward meeting national objectives. The site is updated regularly as new data become available.

Compendium of Federal Datasets Addressing Health Disparities

The Compendium was conceptualized and developed by the Data Workgroup of the Interdepartmental Health Equity Collaborative (IHEC).

MaineHealth Institute for Research | Diversity, Equity & Inclusion

Diversity, Equity & Inclusion at MaineHealth Institute for Research

The MHIR Diversity, Equity and Inclusion Workgroup is committed to creating an equitable, inclusive environment that is welcoming to diverse staff, scientists, and collaborators. Our group comes together twice a month to examine how systemic racism impacts diversity in our professional spheres, the biomedical and health services research questions we ask, and how we carry out our research and communicate our findings. Our members bring with them a diverse range of professional backgrounds; we are physician scientists, basic scientists, social and behavioral scientists, data analysts, and administrative support staff. Meetings are 90 minutes and consist of didactic sessions led by experts and individuals with lived experience, as well as interactive group discussions.

Resources for Working with Systematically Oppressed & Vulnerable Populations

Indigenous Communities

The First Nations Principles of OCAP^®

The Center for Wabanaki Research, Knowledge & Innovation | Wabanaki Public Health & Wellness

The mission of the Center for Wabanaki Research, Knowledge & Innovation is to create a work where Wabanaki people overcome barriers to improve health and wellness in our communities empowered by Wabanaki-led data and research. This work is done by weaving Indigenous knowledge with western sciences to tell the story of Wabanaki people.

Summer Institute: Community Based Participatory Research Institute for Health: Indigenous and Critical Methodologies

Substance Use Disorder (SUD)

The Helping to End Addiction Long-term® Initiative | NIH HEAL Initiative

The Helping to End Addiction Long-term® Initiative, or NIH HEAL Initiative®, is an NIH-wide effort to speed scientific solutions to stem the national opioid public health crisis. Almost every NIH Institute and Center is accelerating research to address this public health emergency from all angles.

The initiative funds over 1,000 projects nationwide. Researchers are taking a variety of approaches to address the opioid epidemic through:

Understanding, managing, and treating pain
Improving prevention and treatment for opioid misuse and addiction

Patient and Community Engagement Resources | NIH HEAL Initiative

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